Wednesday, February 24, 2010

At a snail's pace



That's about how fast we are moving with getting a definite diagnosis of secondary hypogonadism. Several days after meeting with the endocrinologist, DH asked if I thought my GP would listen to my theory and agree to treat him based on that diagnosis. Based on my 5 year history with Dr. M, I told DH that it was worth a shot. I knew that if I went in there with my research, diagnosis, and plan Dr. M would hear me out. If he didn't I knew I could always cry. It's worked before, and I'm willing to show my true emotions with him instead of stuffing and getting pissed! DH agreed to give it another shot, so before he could have a change of heart I called and set up the appointment for the next day.


After the usual 40 minute waiting room delay, we were ushered to the back where DH was weighed, vital'd, and questioned by the nurse. He sat wordless as I explained the dilema. After she left, I asked if I should "shut my trap". His shrug was what I've come to expect from low T DH...disappointing. The old DH would crack a joke or at least tell me that I'm some form of crazy. I sure do miss that man! Anyway, Dr. M came in asking about the labs we had brought from his old doc, Dr. DeG, showing how rapidly and drastically DH's T is dropping. I spread out my research showing him how all of the hormones are related, what the optimal levels are for DH's age and build, and what the AACE guidlines recommend. He admitted that he doesn't know enough about endocrinology to treat such an issue and suggested we go visit one...LOL!!! After telling him the very short story of our last visit ("The guy was an ass, and we won't go back!") he agreed to order an MRI for the pituitary. He also thought we might have better luck going back to the RE we saw several years ago.

The best nurses that I've dealt with work at PREG! Dr. N and Dr. P were so very lucky and very smart to hire these girls. This is the RE's office. The nurse that answered the phone immediatly recognized my desperation, and answered as many questions as she could over the phone. She took the time to speak with Dr. P after pulling our records from the 2008 files! The consensus was that we should complete the MRI to rule out a tumor, then we can make an appointment to speak with either one of the docs. We will be treated as if we are trying to conceive which will include an updated SA to determine if the low T is affecting DH's counts. The nurse explained that they will send those results to the only urologist in our area that treats men with infertility problems, Dr. H. She also affirmed that they have treated men with this problem before, and that they have done so using low dose Clomid. She wasn't sure if they have ever used HCG, but she giggled when I sighed loudly and said "It's about time someone knows what they are doing!"

That was last week, and this week has been just as interesting! It started off with the MRI appt at 7:15 am Monday morning. OMG...that's just insane! Somehow we made it on time, and I didn't even have to sing. Unfortunately the MRI tech doesnt' know what to do with an order that says, "MRI with sedation", so less than 15 minutes after he went back DH rushes out, grabs his stuff, and says, "Let's get out of here!" Turns out the tech didn't give him any sedation, and he flipped out after just the first 2 minutes. There was no way I'd be able to drag him back in there, so we headed over to Dr. M's office to let them know what happened. The nurse says she will let the doc know, and will make calls to the "open MRI" locations to find out if the test can be completed at one of their offices.

Now that it's 9am, and a few offices are open, I place a call to Dr. H. The receptionist reluctantly answers a few of my questions. "Yes, he will treat men with low T that want to maintain their fertilty withOUT using T shots." "No, I can't tell you what that treatment will be because it's based on the individual." "Yes, he will treat based on symptoms, and not strictly the labs." "Yes, I can make him an appointment." "No, he can't be seen before March 9th. Dr. H won't let us overbook. He prefers to have an open schedule so that he can spend enough time with each patient." "Yes, I will put you on a cancellation list, and call you if ANYTHING comes open!"

Did you catch all of those doctor's? We've used Dr. DeG...DH's first GP whom wanted to treat him with T shots, and doesn't know that they will cause infertilty and raisins. Dr. W...the endocrinologist. Enough said there! Dr. M...my GP for the past 5 + years, and now DH's. Dr's P and N...RE's from PREG whom have the best nurses on the planet. Dr. H...urologist with an infertilty specialty. I've got my fingers crossed that he also has all the answers! Whew. My phone's contact list is full, and I'm exhausted!






Sunday, February 7, 2010

Who, where, what, why, and some how

First, the basics:

34 years old

Female

Living in Greenville, South Carolina

Married since 10/28/00

Nurse since 5/04-I worked one year at a local hospital on their telemetry unit and hated the day shift nurses, so I found a job working with special needs children and their families. It is the perfect job for me!

Oldest of 6 children with ages spread between 34 and 12, only 1 boy out of the bunch. All of us came from the same mom and dad, and no we aren’t catholic, and yes they knew what caused it, lol. I live 600 miles away from them, and miss them all fiercely.

I have dealt with infertility for 5 years and 4 months now. I have an irritable uterus, and they don’t know why I don’t ovulate regularly. I also have a fairly rare double genetic mutation that does not allow my body to process folic acid correctly. One important thing that folic acid does is to keep the blood from creating clots.

I have lost 3 babies to the above mentioned gene mutation between April ‘06 and now. The most recent was on 6/25/09. This was the first baby to make it past 6 1/2 weeks gestation. I had heard the heartbeat 3 times, and was told that everything was going well on my new treatment plan. Unfortunately, the doctors didn’t begin this plan until the end of week 6, and by that time the gestational sac’s blood supply had already clotted. So, even though the baby was able to recieve good blood thanks to blood thinner shots, the sac stopped growing and suffocated my child at 8 weeks and 2 days.

Back to more fun stuff…

I take karate 2 evenings per week. It is American style with a little of this, a little of that all mixed together. I am finishing my green belt, and am ready to get down and dirty with the late evening grappling class.

I just joined a gym with my husband. It’s very nice with upscale equipment, a quiet atmosphere, a tanning bed, a hydrotherapy massage bed, private saunas, and the most beautiful private bathrooms! A gym is where DH and I first started to really get to know each other, so I figured it would be a great place to reconnect after the crazyness of the past several years.

I’m training to run 3 miles as part of my black belt test.

I’m a very amatuer photographer.

I’m a (slightly better than) amatuer cake decorator.

Lord, Sinner here...

Lord,
It is I, Sinner.
Many of my friends are hurting tonight.
I am but a man, but you are God.
Among our differences is the fact that you have said over and over again that it is
your delight when we come to you.
And among our differences is that an old stiff necked, stubborn self-centered fool
like me can throw himself at your feet and not be crushed,
as I would crush if I were you.

So I am there Lord.
Forgive me my sins so I may ask of you…
Many of my friends are hurting tonight.
The Spirit tugs me to ask.
The Spirit puts tears in my eyes.
Wave your hand over us Lord,
so that for a moment we can all have peace.
Do not fix our problems – that is not what I ask.
Do not make us better – that is not what I ask.
I ask…. Just touch us.
Pass your hand over us so that we can be reminded you are there.
For just a moment take the hurt from all of us, if it is your will.
It is but a flick of your finger.
Just a nod of your head.
You are God.
Because my friends hurt tonight.

Amen,
Sinner


*Written and prayed by “Shipguy”
He can be found on www.themarraigebed.com forums

Wednesday, June 10, 2009

Adios

It's time for this blog to close! Not only do I not keep up with it, the things I do post are read by people that don't have a reason to stick their big noses into my business! So, if/when I do start another, the people that matter will be invited to visit me!

Sunday, May 24, 2009

Star Wars Sunday

It all started with a mouse...

and a fastpass...


and a strong showing of control....




and patrol....





then we had sun and waiting....and more waiting...




then we went to TGIFriday's for lunch and came back for more waiting.





All for this man to show the thumb's up sign.



















And some pearly whites...whose are prettier?
Then we saw some crazy people walking around like it wasn't 90+ today!

Friday, May 22, 2009

Hey guess what!!!!

I'm leaving for Disney in less than 6 hours to spoil OB at Star Wars Weekends!

My cycle has been coming earlier and earlier, so I was expecting for her to show up in the middle of last week, but it didn't happen. Then I packed to stay at the Karate house over the weekend and took plenty of supplies, and again...nothing! Same on Monday and I started wondering, then Tuesday nothing so I decided to test Wed morning. I took the test and laid it down to develop while I started to get ready. Looked over at it real quick as I was getting ready to throw it away, but wait!!! There is 2 lines OMG *faint* So I hurry to get ready, call Candice to let her know I'm going to be late, send a text to Lisa "It is positive!", and head to the doc's office for a blood test.

I threw the whole office off-kilter because I didn't call first, my ob is off, and the nurse (that i've become close to over the past 4 1/2 years) is in total shock, and has to search down my gyn to write the orders for a beta and progesterone. She said what I've been thinking "How did this happen? You weren't taking anything were you? How is your husband going to take it?" My answers..."No idea except GOD! No! and Probably not so great."

Wednesday night I came home and made dinner for my OB and after he got out of his uniform and got his drink and plate ready I broke the news:
Remember that your mom taught you not to say anything if you don't have something nice to say.
Funny look.
We're pregnant!
How did that happen?
God!
But we only dtd once!
I know!
A little bit of thinking...
Well, don't go telling everyone or posting it anywhere.
Why?
Because we don't know if it's going to stick!
Well, it's there now, and i'm excited, so too little too late!
A lot more thinking...
That's good I guess.
Remember you aren't saying anything about it until it's nice!
Goodnight, I love you.

Thursday I got my numbers! My first beta at 4w5d is 432 *praise
Today my numbers...beta at 5w is 896 *praise*praise

Tonight we had 5 arby's roast beef sandwiches, 2 each. When he got the last one he asked if I needed it or at least 1/2 of it. I asked why I would need that many. He said "Cuz you have to feed two!" *giggle

We are leaving early in the morning for our Disney trip for Star Wars Weekends. And when we get back I'm headed to a maternal fetal medicine specialist to determine if I need Lovenox shots in addition to baby aspirin, 4.4mg Folic Acid/vit b, and my prenatal vitamin. That appt is Wed 6/4 at 3pm. I'll have my first ob appt and u/s on 6/9 at 2:40pm.

And that's the news. When I get back I promise to keep you all up to date with the pregnancy, and back track to get you through the last 6 months. I might also have a few pics to show off from my Nikon with my new 18-250 lens *wink

Friday, May 15, 2009

A lot of catching up to do

But not today!

Today I am worried about what is going on in DC. I believe a big giant Jesus stick needs to come down and crash their party! Have you heard about Bill s.909? “The Local Law Enforcement Hate Crimes Prevention Act.” Sounds like something that would keep O.B. from racial profiling doesn't it? That's not it at all!!! Read the following blog post from Morgan Writes:

U.S. Senate Bill S.909
May 9, 2009 by morganwrites
There is a bill on the fast track in the U.S. Senate (S. 909) that would not
only criminalize free speech but provide elevated protection to
pedophiles.
The bill is euphemistically called “The Local Law Enforcement Hate Crimes Prevention Act.”It should rightfully be called “The Pedophile Protection Act.”
It was exposed as such when an amendment to exclude pedophiles from special legal protections, offered by Rep. Steve King, R-Iowa, was rejected by the Democrats in the House Judiciary Committee. Rep. Alcee Hastings, D-Florida, admitted from the House Floor that this bill put 547 forms of sexual deviancies listed by the American Psychiatric Association, which he referred to as “all of these ‘philias’ and fetishes and ‘isms’” on the same level of elevated protection as “race … religion … gender … or
disability.”
Rep. Louie Gohmert, R-Texas, a former appellate judge on the House committee, clarified further: “…We just rejected an amendment to including pedophilia from being a part of this protected class. Do you realize what that means?
“If a mother hears that their child has been raped and she slaps the assailant with her purse, she is now gone after as a hate criminal because this is a protected class. There are other protected classes in here. I mean simple exhibitionism. I have female friends who have told me over the years that some guy flashed them, and their immediate reaction was to hit them with their purse. Well now, he’s committed a misdemeanor, [and] she has committed a federal hate crime because the exhibitionism is protected under sexual orientation.”If there was ever a time for the Senate to stand and fight with a filibuster, that time is now. Especially since the Democrat majority does not yet have the contested seat filled with Al Franken, which would provide the votes to block a filibuster. Janet Porter of Faith2Action is calling for members of the Senate, Republicans and Democrats alike, to stop S. 909.
This bill in on the fast track to approval. But you can stop it.
Click on this link.