Friday, December 5, 2008
They also told me today that they won't cover my prescription strength Folic Acid4mg/Vitamin B6B12. They say that since it is available over the counter at 400mcg I could just take 10 of those every day for the rest of my life! But, I also need to have massive doses of Vitamins B6 and B12. So... on top of the 10 folic acid pills, I will be taking another 10-15 vitamin B pills for the rest of my life! The very helpful HR lady said that they might cover it if my doctor will write out a letter of justification, "a strong one" she said. I really hope that works because the prescription would be at most $20/month, while the OTC price would be closer to $50/month. And taking 20-30 pills most of the month and also 2 shots/day for an entire pregnancy just plain out sucks!
Even though my probs suck a little, there are other people out there that are also having sucky times. Please check out KayTar's blog and Jennelle's Journey and continue to pray for the healing of Ben.
Wednesday, November 26, 2008
Last week we made a cake for Rodney's 9th birthday. The little kids helped by adding ingredients to the bowl and hanging on my leg while it mixed together. The big kid, Candice, has perfected the art of squeezing stars...cramped hand and all ;^) I figured out that you really need to let red icing "rest" overnight to make it REALLY red. Shucks! Too bad I didn't think of that, um, the day before! As you can see, not so red Elmo was still enjoyed.
Happy Birthday Hot Rod!!!!!
Thursday, November 20, 2008
I'm sorry for the excitement but it's really great to finally have an answer after 4 years and 2 angels.
I have the MTHFR mutation. It's on the c677t gene, and I have 2 of them...one from each parent. It's actually the worst type of MTHFR to have, but now that I know about it we can hopefully do something to prevent another miscarriage and to prevent further complications from this gene.
This gene makes it so that I don't process folic acid correctly or completely. It leads to clotting disorders in the smallest veins and arteries (like the ones found in the uterus and placenta) and future vascular disorders like stroke, dvt's, heart attacks, and alzheimers.
Step 1: Take 4mg of Folic acid...forever, every day!
Step 2: Testing for homocysteine levels...it was sent off today.
Step 3: If those tests are abnormal, I will have to take baby aspirin everyday.
Step 4: If those tests are abnormal, I may have to take a blood thinner shot during ttc attempts.
The other reason to praise? Because now that I know I have it, we can also have my sisters tested before they ttc, before they have to suffer a miscarriage and the heart aches that they bring. I'm actually sending my paperwork to my mom so that she can try to get insurance to cover immediate testing for them. Having this gene leads to other health problems that can be avoided by taking the prescription strengths of folic acid! So, hopefully the test will be covered for the other 3 girls, and they can take the vitamin if necessary.
Monday, November 10, 2008
So, I left you hanging on the edge of your seats on a roller coaster ride like no other. It had plenty of ups and downs before a dramatic ending...
Tuesday 10/14 (5 weeks) - We are in Ohio visiting family and my dying grandfather. I feel some cramps and head to the bathroom and find I'm having some red bleeding, just about 2 wipes worth. I make the decision to call the after hours nurse whom informs me that if I bleed heavily to go straight to the ER, if it stops, to call their office as soon as we return to town on Thursday.
Wednesday 10/15 - We drive safely home and take a break to call my personal nurse who gets us in for an ultrasound (forever more u/s) and visit with the doc at 10am on Thursday.
Thursday 10/16 - I meet with the doctor who does a quick check and notices something bad. He asks me to get dressed and move to another room with a better u/s machine. I get ready, and the u/s tech begins. She does not see anything in the uterus, but sees a large fluid filled cyst in the right tube, a luteul cyst on both right and left ovaries. (Luteul cysts are when an egg pops out at ovulation and becomes fertilized by the sperm, the cyst produces progesterone to support growth and implantation until the placenta takes over in the beginning of the second trimester.) It looks like we had twins!!!!! The bleeding at 5 weeks was the loss of the first twin, and the fluid filled cyst looks like a blighted ovum (second twin) in the right tube. This isn't any good news. The doc puts me on pelvic rest, light duty, and to be aware of sharp pains and bleeding. My bloodwork is still rising 5,900!
Monday 10/20 (5 weeks, 6 days) - O.B. attends this appt to show his support. We start off with the good u/s equipment. Using external monitoring she immediately finds a baby in my uterus. She then switches to the standard internal monitor and confirms that the size of the baby is 5 weeks, 2 days. The baby is 4 days smaller than he/she should be, and we don't see a heart beat, but it's pretty early still. The fluid filled sac in the right tube is gone with only a small amount of residual fluid hanging out. My bloodwork is still rising 9,200. The doctor's official diagnosis is "cautiously optimistic"!
Tuesday 10/28 (7 weeks, our 8th anniversary) - O.B. has to work again this day, so I'm on my own. The u/s shows a baby in the uterus measuring 6 weeks, 1 day. The baby is now 6 days too small. There is still not a heart beat. No cyst or fluid remaining in the tube, the cysts are still present on both ovaries. The doc says that there should definitely be a heart beat present at this time. It looks like this is going to end soon. I agree, but since there was some growth, I would like further testing to make sure we will not do something that will end a life. We repeat the bloodwork today for a level of 15,500.
Thursday 10/30 - Stop into the lab just for bloodwork and they put a rush on it. Around 3:30 they call back to let us know that it is now on the way down 13,600. The baby is dying. When we arrive back home together OB and I hold each other and cry for hours. Neither one of us know why this is happening, there are NO answers, and no relief.
We functioned at work and hid out through the weekend.
Tuesday 11/4 (8 weeks) - O.B. misses a training class to attend this appointment. In for the u/s first. Baby measures 6weeks, 2 days. There was only 1 day of growth. There is still no heart beat, and with the bloodwork decreasing we know that is time to make decisions. After several days of research I ask the doctor about fetal genetic testing. He states that those tests are up to us. He does recommend autoimmune and blood clotting disorder testing done on me. We decide together to draw for those tests, and that if nature does not take it's course we will have a D&C done on Thursday. I step over to the lab for them to suck me dry (8 tubes), then to scheduling for the surgery.
Wednesday 11/5 - This day is our first angel babies 2nd birthday if he/she had been born. I spend most of this day speaking with nurses, insurance billers, insurance go-betweens, HR reps, etc trying to find out if I can have the fetal genetic tests done on my baby. I want to know why both of my babies stopped developing at exactly 6 weeks. I want to know if there is a chromosomal disorder that is preventing me from birthing a healthy full term baby. I want answers. The insurance company doesn't want to pay because they received a billing code diagnosing me with infertility. WHAT???? You can't keep me in that category once I achieve a pregnancy! I go to bed with this thought in my head, "God, if you don't want me to have this baby tested you will take him/her tonight" I started cramping and spotting as I fell asleep.
Thursday 11/6 - I wake up at 8:30 with no cramps and no bleeding. Believing, that there is a way to get the tests covered, I begin the calls again. The insurance biller at my doc's office is out sick today, there are no notes on her desk about me. I call the genetics center and get an answering machine. I call another number for the genetics center...another answering machine. A call comes in from the counselor at Greenwood Genetics center, I tell her the situation and history. She recommends that I continue with the plan to have the testing done, and if the insurance company continues to cause problems, they will work it out later. She also gives me the list of codes that would be turned in on my paperwork. I call those numbers in to the insurance go-between, he forwards them to so-and-so. I rush to shower so that I can get to the hospital on time for my prep. As we walk in I place the call to my doc to let him know to prepare for the genetic testing. I do the paperwork, and go back to the pre-op room. O.B. hangs out with me, the nurse enters to place my IV and give me some "happy drugs" (no effect on me :( ) My cell rang and O.B. soon hangs up saying that THE insurance lady called to let us know that the testing WILL BE COVERED!!!!!
Praise the Lord, He answers prayers, He provides a way!
In all of this I will PRAISE my Lord! He alone knows what is best for my family! He alone has my life planned out! He knows the numbers of hairs on my head! He will guide me and protect me! He gives me the faith of a mustard seed! I will continue to Trust and Obey!!
Wednesday, October 22, 2008
My gpa had surgery around this time to replace a valve in his heart. They used a pig valve transplant. This type is less trying on the patient due to some meds that don't have to be used, but it doesn't last as long, 5-15years on average. They are not used on younger patients, so my gpa was a perfect candidate, he was old, but strong. The day after his surgery at The Cleveland Clinic he was walking the halls, climbing the steps between floors, chatting with other patients, visiting with leaders of foreign countries and their bodyguards...yes, he was that type of man! He recovered quickly and completely and was released earlier than expected. The next 11 years were good, he remodeled the house using wood from the family farm in southern ohio, painted the home, added a back porch, and landscaped. He was faithful to complete the items on the "honey-do" list my gma came up with.
He was a great man of faith. Attending a local baptist church for his whole life. Serving as deacon for over 30 years. Always saying "Grace" everytime the family gathered together. This past June we surprised the whole family by popping in for a 5 day visit. We were able to pull together one of those family gatherings where there is food everywhere, people everywhere, tons of conversations, and a group of family members ranging in age from 10-85. Amazing!This is my grandfather. I am the first born daughter of his first born son. And he is headed home to heaven tonight! God Speed Grandpa! Please kiss my first baby for me. I love you!
Wednesday, October 8, 2008
It came down to our very last try. I met with the nurse and told her about this research that had been done showing that Floradix elixer has made women's uterine lining thicker (that was one of my main problems, nothing for the bean to snuggle into). I took the stuff (YUCK!) for 8 days and came in for an ultrasound to check my lining. It was thicker than it had ever been before! The nurse was amazed. She went out to speak with the doc, and came back a few minutes later with just 2 prescriptions. 1 was Femera 5mg days 3-7, the next was for HCG shot on Ovulation day. She said they would order the super-duper shots (that no one in our area carries) that will increase my follicle growth. "Wait, wait! I don't have problems with follicle growth, I have problems with my lining." "Of course, these shots do both." "Well when I took just one shot not the 3 you are now suggesting I didn't O and my lining was still crap! I'm not doing those shots again, not for $400! And I want progesterone suppositories to support my lining until the corpous luteum kicks in." "I'm sorry, I don't think we can work with you then. You need to follow our protocol." I paid my office visit bill at the door and left...with my scripts for Femera and HCG ;^P I drove 5 minutes down the road to the local CVS and had them filled.
So, since we didn't have the super-duper shots or the progesterone we were left with what we knew wouldn't work. After about a week, Officer Boop decides we should start looking into adoption. Knowing how he occassionally speaks out of turn, I gave him 24 hours to think over what he just committed himself to. He afirmed that indeed he did wish to go ahead with the paperwork. So, my little Type-A/OCD self gets to work....research, call, talk, research some more. Get freaked out by how much $$$ it costs, how much paperwork there is, how long the time will be before we are chosen, the possibility that we'll be dumped by our baby on birth day. *cry, cry, hysterically cry, uncontrollable sobs!* And suddenly a tiny sound in my head. The old hymn Trust and Obey . Singing softly, then louder, and loud enough to get my attention. My only thought was "OK God, I get it, you can handle even this. It's totally in your hands." I walked to my computer and shut it down. I prayed for a while, then went to bed and slept peacefully for the first time since the decision had been made. 3 days later a great friend of mine called to find out how we were doing with our treatments. I told her the news and congratulated her on finding out that she is having boy/girl twins with the help of the RE clinic I had just walked out on. The purpose of her call was to find out if I needed progesterone suppositories!?! She had made it long enough that she wouldn't need the ones left and was offering them to us!!!!!!! Do you realize what that call was? The voice of God! The progesterone was the last piece of the puzzle *halleluja* I thanked her immensly and let her know that we would think and pray about it for just a few days. That following Monday I stopped by her house to visit and pick it up. O.B. agreed that it would be best for my sanity if we rid our cupboards of all fertility meds, syringes, needles, etc.
So on September 9th I started this cycle. I took the Femera on days 4-8 (thinking that 3-7 was a bit too early) while drinking my daily dose of Floradix and guzzling quart after quart of red raspberry tea. I peed on a stick on days 9,10,11,12,13 before finally seeing a strong positive result. That means shot time. I loaded up that syringe with bacteriostatic water, inserted into the jar with the powdered meds and let 'er rip. Swish. Swirl. And now suck it back out with the syringe. Change over to a sharp needle, carefully tap the syringe to rid it of bubbles, recap. Carry it and a alcohol wipe back to the bathroom where O.B. will not have to witness the self-mutilation. Find the right spot of thigh muscle, wipe, and BAM it in, then push the stopper to ensure deep placement of the medicine into the musculature, pull out quickly and apply pressure with a sterile cloth. Wait for that to START burning then command O.B. to make a deposit, same as yesterday, the day before, 2 days before, and 2 days before. Oh, and don't forget tomorrow's and the next night!!!
Once that fun is finally complete you begin inserting progesterone suppositories, not in your ears or your nose, not even in your rectum, noooooooooooo they go THERE! Cold or they melt too quickly. And they are the size of a bullet from a 40 caliber handgun. Did I mention they are cold? Oh yeah, do them 2 x's a day, 12 hours apart! So, now you are wearing panty-liners 24 hours a day to ensure that your clothing doesn't end up with greasy streaks when the glycerin melts. Within those first 2 glorious days you develop some irritation...down there! The burning, the itching, the cottage cheese chunks-EW! A yeast infection. From the suppositories. That you have to take or lose the possiblity of having a baby. Ever.
Now you count down the days from when the pee stick said "GO" 14days, 13days, 12days, 11days, 10days, 9days, 8days, 7days, 6days, 5days, 4days...test=BFN, 3days ...test=BFN, 2days ...test=BFN, 1day ...test=
Is that a line? Take a picture, blow it up, analyze it, break it open and hold it into the sunlight, look again, post the pic on the internet and ask all of your "friends" to look at it and analyze it. Give up and take a different brand of test:
For sure! That's 2 lines alright! *start giggling, dancing, hooting, hollering* Hurry up and get ready because I'm supposed to be at a birthday lunch for a close family friend in 5 minutes!! Rush in there 15 minutes late with the excuse "Your going to be a great-grandma, grandpa, grandma, 2 uncles, 2 aunts, 2 cousins, and 1 more on the way!" More hugs, dancing, hooting, and hollering!
OOPS! Forgot to tell O.B. I manage to track him down to a local Firehouse Subs where he is eating lunch with his rookie and his former rookie. We give him a card that said inside "Daddy-to-be". He showed his typical excitement...that of a night shift disc jockey, then ran out the door to help a fellow officer that was involved in a foot chase.
So, here's the final verdict:
I went to the docs office first thing monday morning for blood work. The wonderful nurse, Amanda has been working with me for 4 years now. She greeted me in the hall with a bear hug and a whisper that she was putting this set of labs through STAT. No waiting until tomorrow, baby! The number came back at 226! *Yikes* That's a bit high. I'm considered to be 3 weeks along, the number should be 5-90. So today rolled around and I stuck my arm out again. More blood draws, but no STAT rush. Going to have to wait this one out! It shoud double, but if it's higher than that we may be looking at twins. YAY! So, OB doesn't hear me yell!
I'm sorry, I'm too exhausted to write out the bad and ugly stories. I just have 2 prayer requests until then. Pray for my entire family, (in a nutshell)my paternal grandfather is being released from the hospital with end stage cancer to go home to die. They are sending him with oxygen and pain meds. We'll be leaving town early Friday morning to hopefully make it home in time to say goodbye.
The ugly story is that O.B. after 13 years on the Greer PD yet again did not receive a lateral move that he interviewd for. The person that was chosen has 10 years less experience, and didn't even request the position. But the person has less outer anatomy between their legs.
Sunday, September 21, 2008
Hold on so you don't make a fool of yourself.
Lucky row 113! And a view of the jumbotron.
Let's make that clear...113?
I sculpt ice.
I cut fruit, put it into ice bowl so it can cool.
I like to use my manly tools to make pretty pictures!
Eiffel Tower and a fruit tray
Kid's Station-a masterpiece!
A church-sorry I didn't notice the name.
Tuesday, August 12, 2008
Amanda, visiting from Cali.
Sarah that visited here last year. She'll be back!!
Samantha, David, and Emily-feel the love
"Littles", mom, and dad waiting oh so patiently in the background.
The entire family.
I think I might save some funny pics for another day.
Thursday, August 7, 2008
Wild turkey on our porch at 6 am. We live in the city, in a subdivision, there shouldn't be wild turkey's trying to break into our house!!!!!!!
Now I have to tag 7 more of ya:
1) Best Practice -Get to work "other" Lisa!
3)Moon Cookie- she takes some of the most beautiful pics ever!
4)Oh My Stinkin' Heck-more great pics, fun ideas, and a family I wish I was a part of!
6)A Work of Art-Bennie, the man that got me into blogging to begin with! Read the whole blog people, it's amazing!!!!
7)Two girls and an angel-oh my! What to say about Melissa. She's a great friend that's been through too many TWW's with me!
Friday, July 18, 2008
I've decided to make a birthday cake. This lovely lady deserves a beautiful cake. She loves antique items with class. She is a gem. She is a work of art. She is a masterpiece. I thought a jewelry box styled cake would be fitting.
The lovely, toasty, scrumptious smelling cakes.The items that will decorate the cakes. There is a set of silver jewelry to place into the box. I'm in the process of beading silver and pearl beads to use as an edgeing. And curly-q stamps to use as a pattern.
Wish me luck!!!!! Hopefully I'll be back before the end of the weekend with a finished project and pics of a great surprise!